Long COVID Campaign was founded in 2024 by PATIENTS who need answers ourselves.
What started with a GoFundMe, a Twitter account & hope for solutions has grown into a “small but mighty” campaign of patients, caregivers, health workers, researchers, advocates & policymakers working for change in the U.S. & globally.
Meighan using her wheelchair on the right, with LCC patient-advocate Melissa standing at left, attending the 2024 National Institute of Health’s annual RECOVER-TLC meeting.
Meighan Stone
Founder & Executive Director
A long-time non-profit executive and advocate before developing Long COVID, Meighan has led projects with the United Nations, Bono's ONE Campaign, World Economic Forum and with political campaigns, world leaders and technology corporations globally. Named one of Fast Company’s Most Creative People, she previously served as a senior fellow at the Council on Foreign Relations, entrepreneurship fellow at Harvard Kennedy School, and as the founding president of Nobel Peace Prize laureate Malala Yousafzai's Malala Fund.
But none of those experiences were enough to overcome barriers to treatment and care when Meighan developed Long COVID. After becoming home-bound and disabled by Long COVID in early 2022, her advocacy started from bed when a Long COVID clinic informed her there no FDA-approved tests or treatments to help her or other patients.
After Meighan's condition improved due to the generosity and guidance of other Long COVID, POTS and ME/CFS patients online, she immediately began advocating for accelerated Long COVID research and accessible treatment for all. After organizing a diverse delegation of patient-advocates for a critical 2024 Senate Long COVID hearing, Meighan launched the Long COVID Campaign (LCC) with just her own medical GoFundMe funds and a Twitter account.
Today, LCC's work has expanded to in-depth Long COVID policy and advocacy, media outreach and patient-advocate support.
"More than six years into this pandemic, Long COVID treatment is still a 'DIY' project for most patients—
and that's got to change."
— Meighan Stone, Long COVID Campaign Founder & Executive Director